Friday, July 24, 2009

Monday, July 20, 2009

Update Anyone?

I just wanted to do a quick update on how things are going. Right after we arrived at our home in Boise, Ivy's nurse, Nancy, paid us a visit to check on Ivy's progress after her cath. She was doing well, her sats were 83 without oxygen, she'd gained 2 1/2 ounces, and she was happy as a clam. Nancy agreed that it would be okay to take off the oxygen as long as her sats stayed above 75, so that's what we've done. She hasn't needed it since. She can sit up now, but only for a minute or two before she falls over. We have an appointment with the physical therapist, Katy on Friday, and hopefully with the back specialist, Pat at the same time. Katy is a little worried about the curve of Ivy's back and thinks she may have signs of scoliosis. Ivy also tilts her head to the right side all the time, so we just want to be sure to start working on those with a specialist before they get any worse.

Corbin is as cute as ever, he constantly amazes us with his vocabulary and the silly things he says. He had so much fun with Grandma for two weeks that its been a little hard for him to adjust to life with mom again. I'm not nearly as fun as Grandma, and that really doesn't sit well with him. Grandmas are supposed to be more fun right? I'm the one who has to discipline him, which makes me not quite as cool as her, but thats okay. He'll get used to it. He's looking forward to starting preschool in the fall, and in the meantime is actually enjoying primary again. He didn't like it for a while there (I have no idea why), but now he goes without crying, or without us having to bribe him, it's great.

Dexter is adorable. He is getting so big, and he's finally starting to be a little talker. Usually only Scott, Corbin, and I can understand him, but at least that's something. Lately he has been absolutely obsessed with cars. He carries two with him wherever he goes, he even stole two from Grandma's house (we didn't find them until I was unpacking, sorry Marde). He takes them to bed and falls asleep holding them. He wakes up with them and puts them on the table next to his cereal while he eats. Its crazy, sometimes he wants to carry around every car he can find, but his little hands can't hold them all, so he stuffs some in the seat of his little bike, and then gets frustrated when he still can't take them all. It's pretty funny.

Scott and I are getting adjusted to being parents of three kids again, instead of just one. I think we're doing okay, most of the time. We also are once again in charge of our yard, we came home to yellow grass in the front yard, and huge veggie plants and even huger(is that a word) weeds in the back yard. We spent all last week pulling weeds and adjusting sprinklers to get things under control again. We also came home to a new calling in our ward. They called us to be primary workers, working in the junior nursery. That will probably be a good thing since lately Dex is having a hard time letting us leave him there. I think we are both excited to have a calling, but I'm going to miss sunday school and relief society, and that short time I have away from children.

Anyway, that's about it for us, sorry about blabbing on for so long. Also, thanks Marde and Ross for letting us use your stuff in Bear Lake, letting us stay in your house in sandy, and for taking such good care of our boys for two weeks, we love you guys!

Friday, July 3, 2009

Home for the Holiday!

Well, not exactly home, but out of the hospital!

I decided to sleep back at Marde's house last night, to get a good nights sleep, and to see my boys, who I hadn't seen since tuesday morning. It was wonderful, by the way. I think that is probably the first time I've been able to sleep through the night in about 6 months. Anyway, I was getting ready to head back over to the hospital this morning, to hang out with Ivy and pester the docs into letting her transfer back into the surgical unit, when all the sudden my phone rang. It was Ivy's nurse at primary's, he told me to come pick her up, they were letting her go home!! I seriously sprinted up the stairs to tell Scott, and was out the door in less than three minutes.

It took about a half hour to sign all the papers, and pack up her stuff, and we were back at Marde's by noon. What a marvelous day!! I couldn't be more happy that they let her go. Fortunately, I didn't have to see Dr. Jerkface again. Maybe when we have to come back in a few months I will have had enough time to forgive him for being a jerkface and I wont have to fight my impulses to punch him in the face, but for now, it's probably best that he kept his distance.

Here are some pictures from our last 3 and a half days at primary children's. Notice how happy Ivy is in every single picture. That is because she was being her normal, cute, NOT sick self! Enjoy.




Thursday, July 2, 2009

Ivy's Latest Cath

So Ivy had her cath today, the one we didn't plan on. Dr. Jerkface (I'm not going to say his real name since I can't stand his freaking guts) said she did fine. They did some things that will make her Glenn procedure a little easier when the time comes in 3 or 4 months. After the cath they said she needed to be in the picu overnight, which we hate. The picu is loud, there's nowhere to sit, and there's nowhere to sleep. If I want to stay over night with her I have to fight other parents for a room, and I am just so sick of being here, that I don't know if I even want to.

Dr. Jerkface said she would probably need to stay a few more days, even though originally he told us that it would be just overnight. When I pointed this out to him he got defensive and said that Ivy would never be normal and we agreed to go along for the ride when we first made attempts to save her. "I know that Dr. Jerkface!!" Can you tell this doctor is not my favorite person.

So anyway, we are in the picu waiting room now, because its shift change and they wont let us in for another hour. We don't know what we are doing tonight, but we are just hoping she can get out of the annoying picu as soon as possible. I guess that's all the frustrations I care to vent out for now. I'm sure I'll have more adventures with Dr. Jerkface to share in the next few days.

Wednesday, July 1, 2009

Doctors Do Little

Well, the last 2 days have been pretty frustrating for us. So far nothing has gone as we planned. We were scheduled to have Ivy's big surgery today (July 1st) but after we arrived at the hospital yesterday we were informed that the surgery had been canceled a week ago! And of course, nobody told us, the patient and parents! The doctors in Salt Lake decided that it wouldn't be a good time for her right now and want to wait another 6-7 months. This is all after they had looked over her paperwork weeks ago and decided then that she was ready. Anyway, they were worried about her oxygen level and decided to admit her against our will for 2 days and 2 nights until they could do a minor cath operation on Thursday to help prolong the oxygen situation until she is really ready for the surgery. So, Ivy and Rochelle have been stuck in the hospital for the last 2 days all so they can watch her oxygen level, something we can easily do at home and have been doing fine for the last 6 months. For some reason they didn't believe us that we could take care of her on our own for 2 days while we waited for the procedure. Needless to say, we are not too happy with the situation right now. Tomorrow (Thursday) she is scheduled to have the cath and if everything goes well, we might be able to get Ivy out of that hospital that night or early Friday. Who knows what will happen? Nothing is certain right now because we are basically walk-ins that are being worked into the schedule because our "scheduled" times were canceled behind our backs.