Tuesday, October 27, 2009

Happy at Home

We're home! We spent exactly 2 weeks in Salt Lake for Ivy's surgery. Everything (as I'm sure you know) went much better than last time. We are so happy to be back home, and back to our regular life. Corbin is back in school, they are back to riding their bikes everyday (even though its cold). We're taking walks, and looking at neighbors halloween decorations. Ivy is her same adorable self, making us giggle with the cute things she does. She's healing like a champ, and hasn't needed any pain medication in 4 or 5 days, and no longer needs oxygen. She's just my little hero! It will probably be a while before we are able to go to church or anywhere else again, which makes us sad, but we have to avoid crowds because of swine flu and rsv. Ivy can't get the regular swine flu mist vaccine because she received blood transfusions during surgery, so we have to wait til they get the shot kind in our area. And since we all live together, we all have to get the shot version too, which could be a while! Anyway, here are some pics from the last few days. Enjoy.

Sunset from the drive home, I just thought it was pretty.

Ivy enjoying the outdoors.

Now we have two wiggle bikes, and the boys are loving them.

More wiggle bike fun.

Getting some use out of their mario/luigi hats before halloween.

Isn't that the cutest thing you've ever seen!

And more cuteness....

Corbin really missed his bike!

Wednesday, October 21, 2009

Ivy is Home

Ivy has proven over her last 8 days in the hospital that she is still wolverine baby. After a rough day yesterday, waiting for a sedated echo, and not being allowed to eat because of it, we were ready to be done with the hospital. So imagine our excitement of being let out today!! Scott and I walked off the elevator into the Surgical unit, and they informed us we could leave even before we walked in Ivy's room. So exciting. We were home (well, Marde's home in Sandy) before 1:00pm. Ivy is doing well, although she is going to have to be on oxygen for a while again, and she got one new medication. We have to be careful picking her up and putting her down for about six weeks, but other than that, we can play and be normal again. We are so happy with her, she amazes us everyday. We are going to stay here until the weekend to give her chest a little more time to heal before she's strapped into the carseat for such a long drive, but at least we don't have to go to the hospital anymore, or leave her there crying and broken hearted at our walking away. 8 days is WAY better than 7 weeks, we'll take it!

Last night, after she was finally allowed to eat again.

After we arrived this morning. She was so happy to see daddy, who she hadn't seen since Sunday.

Getting ready to go.

Bye, bye Drs, and nurses, I won't miss you!

Eating and playing with her shoes right before we left. Life is good again!

Saturday, October 17, 2009

Still Doing Great

So when we arrived at the hospital this morning Ivy had all her tubes and wires already out! All she has left is one IV in her foot, and her oxygen. We moved from the picu to the surgical unit because she is doing so great! We gave her a sponge bath, and were able to hold her again. Another awesome day!





Friday, October 16, 2009

Better Than Expected

Ivy is amazing! She is pulling through this procedure almost like it didn't even happen. For example, its like she doesn't notice tubes are coming out all over her torso, or that she has a huge healing incision, and those headaches I mentioned yesterday, well either she isn't having them, or she's one tough cookie cause she isn't acting like she's in any pain at all. I even got her to smile playing peek-a-boo, and Scott got her to make her silly stinker face! She is back to her adorable self just 24 hours after open heart surgery. Amazing.

Anyway, it was a good day for other reason's as well. The docs took out her atrial line (this tube thing that was going in her body near her sternum and went into her heart), and the IV going in her neck (I don't think they call it an IV when its in her neck, maybe IJ, but I don't know, not really the point). She also got to sit up a little bit today, and I was able to feed her a few bottles, which she ate very well. We should be able to hold her again tomorrow, she will maybe move from the picu to the surgical unit, which would be great, and hopefully they will remove her drainage tubes also!

We had a nurse that we remembered (and loved) from Ivy's 7 week hospital stay after she was born. She remembered us too, and it was fun to catch up, not to mention she was willing to let us pretty much run the show all day (like decide when Ivy needed a bottle or needed to sit up, etc). I don't think that we have ever had such a good day a primary children's! I hope there will be a few more to come.

Finally untied and able to sleep on her side.

I painted her nails and put a bow in her hair. Who says you can't look pretty while in the hospital?!

Sitting up and giving her back a rest!

sitting up again, but I thought it was a good view of all the wires and tubes she has coming out of her body.

Thursday, October 15, 2009

Surgery is Over, Recovery Begins

Ivy had surgery bright and early this morning. The docs took her from us at about 7:30am and the surgeon didn't come talk to us again until it was over at 1:45pm (although, we received updates every hour from a nurse). She did really great during the whole procedure, they told us that everything went smoothly with no surprises. We were finally able to see her at about 2:45pm, and she was still pretty sedated and had a breathing tube in. By 4:05pm the tube was out, and she seems a little less grumpy now, and she's slowly waking up. Her oxygen saturation levels look great, and her skin and lips look a little pinker now. The saddest part is that she is strapped down to the bed so that she wont pull anything out, and they told us that a major side effect of the procedure is headaches. Now begins recovery, please pray that she makes it through without any surprises.

Here's Ives last night when she started feeling better after her cath.

Here's what Ivy's scar looked like this morning before surgery (I hope it still looks that good when it heals).

Once again she was super cuddly before they took her away.

Here she is right after surgery. She's once again sportin' her gauze tuxedo and brown mustache.

Just a shot of all her meds!

Here she is after they removed the breathing tube (bye, bye brown mustache), now she sounds like a squeaky toy! Have a nice nap, sweet girl, you deserve it!

Wednesday, October 14, 2009

Cath and Surgery update

The cath is over and done with, and Ivy is doing great. We got started pretty early this morning, and things went really well. Scott and I had a 3 hour wait while she was having the cath before we heard the verdict on whether or not surgery would get the go ahead, and once it was over we only got good news. The surgery will occur as scheduled, bright and early tomorrow morning. It will be a pretty long procedure, but they don't anticipate any problems, and should be done sometime in the afternoon. Of course we will post as often as possible, but you know how it is.......so be patient. In the meantime, here are a few pictures from today.....Thank goodness the hospital has free wi-fi!

Here she is playing in her hospital jammies before we really got started

waiting, waiting, waiting for things to get going

This was right before we handed her off, she was tired, hungry, and didn't want to go with those people!

They had A LOT of trouble getting an IV in, here are the tries on her hand, her foot looks the same way, full of holes!

Here she is relaxing after a long hard day, getting ready for an even longer, and way harder day tomorrow. We love you baby girl, be strong!

Tuesday, October 13, 2009

Surgery is on....

......So far......Ivy has a cath tomorrow to prepare her for surgery. Due to much complaining and question asking on my part, Dr. Cowley is permanently out of the picture. (you may remember him from previous posts, referred to as Dr. Jerkface). We got two different, much more pleasant, cardiologists to work with this time around, who were nice enough to talk with us and answer our questions without accusing us of being uncooperative. Heres hoping this experience will be a better one! Anyway, Cath tomorrow, surgery on thursday. Pray for Ives!

ps...If the cath doesn't go well, surgery may be put off again, so especially pray for that cath to go well!

Wednesday, October 7, 2009

BIG NEWS

Ivy is scheduled to have her 2nd stage heart reconstruction surgery next thursday (oct 15). On our way to SLC this weekend. Pray for my baby girl! (And cross your fingers that they don't cancel on us this time)